Sunday, March 10, 2013

Other great causes - National Org for Rare Disorders

Week 13 wrapped up with 40 miles, much fewer miles than usual as I recovered from last Sunday's 30k race.  Thanks to everyone's generosity, my fundraising for Special Education Advisory Council of Hopkinton is now $1,000 past my minimum goal.

As a result, I'd now like to help some other running friends with their fundraising:
Please consider donating to Jen Tedstone's fundraising for the National Organization of Rare Disorders!

  • Jen Tedstone of Hopkinton, Massachusetts, is running the Boston Marathon, fundraising for National Organization for Rare Disorders. 
  • After participating as a spectator since childhood, Jen is now jumping in as a runner this year, alongside 15 other Genzyme Corp employees and a patient partner
  • Jen is bringing attention to a rare disorder called Congenital Hyperinsulinism, which causes low blood sugar that can lead to brain damage, stroke-like symptoms, and cerebral palsy if not recognized and treated effectively early. 
  • You can read more here about Jen's patient partner, 16 year old Ben

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